Experts call for ban on schizophrenia ‘label’

Published in: Daily Mail, 9 October, 2006

Schizophrenia should be abolished as a concept because it is unscientific, stigmatising, and does not address the root causes of serious mental illness, a group of experts said today.

The diagnosis, which emerged in the 19th century, is flawed and harmful, they claimed. It not only grouped together patients with widely ranging symptoms, but offered no explanation for their illnesses.

Once given a diagnosis of schizophrenia, a person was labelled an incurable social misfit and placed at the mercy of a psychiatric system that mostly benefited the drug industry.

A new campaign called CASL (Campaign for the Abolition of the Schizophrenic Label) is said to be gaining increasing support from both patients groups and professionals.

It wants patients to be assessed according to their individual experiences and histories rather than blanket-categorised as “schizophrenic”.

Read more: http://www.dailymail.co.uk/health/article-409472/Experts-ban-schizophrenia-label.html#ixzz1H2oOhJEG

Mad In America

I’m off to America tomorrow to help spread the word about the pioneering work of the Hearing Voices Movement. On Monday I will deliver the first session of the ‘Starting Hearing Voices Groups Training’ at the Western Massachusetts Recovery Learning Community. It will be great to be a part of these important developments particularly as Gail attended the very first Hearing Voices Group Facilitation training that I ran in London back in 2005.

This training looks to continue the positive momentum of the Hearing Voices Movement in the United States, with the primary purpose of training people to start their own Hearing Voices Groups in the local area. I will be facilitating the training along with Oryx Cohen, Director of the National Empowerment Center’s Technical Assistance Center and former Co-Facilitator of the RLC Hearing Voices Group in Holyoke and Gail Hornstein, Professor of Psychology at Mount Holyoke College, Co-Facilitator of the RLC Hearing Voices Group and author of Agnes’s Jacket.

On Tuesday I will be interviewed by a filmmaker about my work, meet with members of the Recovery Learning Community in Worcester before going to deliver my presentation at Mount Holyoke College entitled –

Bad Things That Happen to You Can Drive You Crazy! –

Understanding Abuse, Trauma, and Madness and Working toward Recovery.

See this link for further information: http://www.mtholyoke.edu/news/stories/5682743

On Wednesday I will travel to Framingham where I will give a presentation at Advocates, Inc.

Before I fly back home on Thursday evening, I will meet Robert Whitaker, author of Mad in America and Anatomy of an Epidemic. Bob has agreed to speak at a fundraising event for the Hearing Voices Network when he is in London in November – watch this space for further info!

From Vicarious Trauma to Transformation

I’ve just got back from delivering a 2 day training course with Eleanor Longden on Abuse, Trauma and Dissociation, to 35 mental health professionals in Shrewsbury. I was really struck by people’s willingness and commitment to staying with some really difficult material. We spoke about the importance of having good support and the need to take really good care of ourselves when working directly with trauma, to protect us from the effects of vicarious traumatization.

Vicarious trauma, the process of change that happens because you care about other people who have been hurt, and feel committed or responsible to helping them, can lead to changes in your psychological, physical, and spiritual well-being. When you identify with the pain of people who have endured terrible things, you bring their grief, fear, anger, and despair into your own awareness and experience. Your commitment and sense of responsibility can lead to high expectations and eventually contribute to your feeling burdened, overwhelmed, and perhaps hopeless. Vicarious trauma, like experiencing trauma directly, can deeply impact the way you see the world and your deepest sense of meaning and hope. Vicarious traumatisation is not the responsibility of clients. Organisations that provide trauma-related services bear a responsibility to create policies and work settings that facilitate staff (and therefore client) well-being. Each trauma worker is responsible for self-care, working reflectively and engaging in regular, frequent, trauma-informed supervision. There are many ways of addressing vicarious traumatisation. All involve awareness, balance, and connection.

Beyond vicarious traumatisation lies vicarious transformation. This is the process of transforming one’s vicarious trauma, leading to spiritual growth. Vicarious transformation is a process of active engagement with the negative changes that come about through trauma work. It can be recognized by a deepened sense of connection with all living beings, a broader sense of moral inclusion, a greater appreciation of the gifts in one’s life, and a greater sense of meaning and hope. Vicarious transformation is a process, not an endpoint or outcome. If we can embrace, rather than fending off, other people’s extraordinary pain, our humanity is expanded. In this receptive mode, our caring is deepened. People who have suffered trauma and abuse can feel that we are allowing them to affect us. This reciprocal process conveys respect. We learn from trauma survivors that people can endure horrible things and carry on. This knowledge is a gift we can pass along to others.

Due to popular demand we will be offering further courses this year on Abuse, Trauma and Dissociation in Nottingham, Cork and in London. See events section for further information.

Your Feedback

If you have heard me speak at a training event or conference, I’d love to get your feedback too. Just add your comments to the bottom of this post.

With thanks, Jacqui

A role model in the Hearing Voices Movement

For us Jacqui is unique and it is a great pleasure having known her for many reasons personally as well professionally. Jacqui survived terrible abuse and became strong by using her experience to learn from it. She is one of the few people who is able to really understand that the voices are related to her life history and even more important allow herself to feel it. This combination of understanding on a rational and emotional level became her power. This also enables her to be the caring mother of 2 teenage daughters.

As a professional from experience Jacqui is a role model in the Hearing Voices Movement. She has developed a qualitatively very good course in setting up and guiding Hearing Voices Groups. She has helped many individuals to better cope with their voices and their problems in their lives. She is a very good speaker and has a lot to tell about the voice hearing experience and their backgrounds. She has written many very good articles and book chapters. She especially clearly explains the interaction between different consequences of traumatic experiences like hearing voices, dissociation, self harm and eating disorders. She has a lot to give and a lot to teach professionals and also voice hearers. Besides all this she is Chairing the English Hearing Voices Movement and a member of the Board of Intervoice.

Marius Romme & Sandra Escher

An extremely effective developer of services

I have known Jacqui Dillon for several years now — we first met in the early 2000s when she attended the London-based Critical Mental Health Forum, in which I was also involved.  Jacqui has been an extremely effective developer of services in the third sector.  She developed the London Hearing Voices Project and has also chaired the national Hearing Voices Network for several years.

She is a thoughtful and innovative worker who builds good collaborative relationships both with those who use mental health services and with mental health professionals.  She has also been very effective in securing funding for those organisations with which she works.

I work on a clinical psychology training programme and Jacqui has taught sessions on a range of topics on our programme for several years now.  Trainees have said that she is a very engaging and inspiring speaker who also has lots of practical advice about how to bring change in mental health services.

When I’ve seen Jacqui speak I also have been moved and inspired.  Given her earlier career as a journalist it is no surprise that she has been doing more writing, recently co-editing Living with Voices.  She has a national and international reputation and is approached by a range of media organisations for comments in relation to voice hearing and mental health more generally.

Dr Dave Harper, Reader in Clinical Psychology, University of East London. Academic Tutor on the Doctoral Degree in Clinical Psychology programme.

A highly skilled, empathic teacher

I have employed Jacqui Dillon on a number of occasions, both as a trainer of mental health-care workers, and as a workshop facilitator with professional and service-user participation.

Jacqui is a highly skilled, empathic teacher who through her work and experience is an inspiration and motivator to all, promoting innovation and much-needed change in the way we approach psychiatry today.

Trevor Eyles
Developmental Consultant, Social Psychiatric Services
Aarhus Kommune, Denmark

Challenging and inspiring

We have used Jacqui on our undergraduate and master’s Social Work courses for the last few years as well as on our AMHP training courses. Jacqui presents an articulate and powerful view of mental illness which is both challenging and inspiring to our students and staff. Feedback from students is overwhelmingly positive, many stating it is the highlight of their course, and that Jacqui’s message is one that will stay with them for life. I personally feel that anyone with any contact with mental health issues should attend Jacqui’s training, and that if more people accepted her views, the lives of people diagnosed with mental illness could be vastly improved.

Robert Goemans, Professional Social Work Lead, Lincolnshire Partnership NHS Foundation Trust & Lecturer, University of Lincoln.