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Just Saying It As It Is: Names matter; Language Matters; Truth Matters

 

 

Clinical language has colonised experiences of mental distress and alienation. Consequently, many accounts of healing and recovery seem to be about a decolonising process, a reclaiming of experience (Dillon and May, 2002). These counter narratives, which offer diverse representations of survival in adversity (hooks, 1993), follow in a long tradition of protest literature (Hornstein, 2002). From slavery abolitionists and suffragettes, to feminists and black and gay civil rights activists, who have repudiated dominant, oppressive ideologies via the language of discrimination, to challenge injustice. Many of us within mental health activism have argued that it is crucial to decolonise the medicalised language of human experience in order to contest the dominant paradigm of the biomedical model of madness and distress. After all, fighting for the rights of those labelled mentally ill, is the last great civil rights movement (Dillon et al, 2013).

 

A presentation by Jacqui Dillon at Carina Håkansson’s Family Care Conference in Sweden from Mad In America

BAD THINGS THAT HAPPEN TO YOU CAN DRIVE YOU CRAZY

Jacqui Dillon, the national chair of the Hearing Voices Network in England, discusses the work of the Hearing Voices Movement at the recent conference  ‘Presence and Participation: Arguments for the Humanistic and Sustainable Work We Do’ hosted by Carina Håkansson’s Family Care Foundation in Sweden (25-27 April 2013). To listen to Jacqui’s presentation, please click here.

The full conference proceedings are available via live streaming video on MadinAmerica.com.

DSM-5 Protest Tuesday 4th June 4.30pm onwards at the Institute of Psychiatry

Speak Out Against Psychiatry (SOAP) are a group of former patients, carers, mental health professionals and concerned citizens who are campaigning for humane treatment for people experiencing mental distress. SOAP are opposed to forced treatment, electro-shock therapy and the psychiatric drugging of children. SOAP also promote humane alternative ways of helping people in distress.

SOAP are organizing a demonstration to coincide with a forthcoming Institute of Psychiatry conference on the DSM-5 (the latest of edition of the “Diagnostic and Statistical Manual of Mental Disorders” a book published by the American Psychiatric Association which is widely used throughout the world to classify mental disorders).

The protest will be on Tuesday 4th June from 4.30pm till early evening at the Institute of Psychiatry, De Crespigny Park, London, SE5 8AF.

SOAP are organizing the protest as they feel that the DSM-5 makes it easier for normal human experiences to be labeled as mental illness. For example people experiencing grief can be more easily given the label “Major Depressive Disorder”, and children with temper tantrums can now be diagnosed as having “Disruptive Mood Dysregulation Disorder”. 

A spokesperson for SOAP says “The DSM encourages a tick-box approach to understanding human distress which serves the interests of professionals and drug companies rather than the people who really need help. With the DSM-5 things have been taken a step further: even mainstream organizations such as the National Institute for Mental Health and the British Psychological Society are distancing themselves from the DSM-5, claiming it is unscientific. ”

SOAP feels the DSM-5 will increase the number of people stigmatized by a mental health diagnosis, increase prescriptions of mind-altering drugs, and further what they see as a worrying trend of everyday human problems being put in the hands of highly paid experts and pharmaceutical companies rather than our families and communities.

SOAP also objects to the DSM approach in general, where new disorders are created by committees without any objective biological evidence. SOAP highlights the fact that in earlier versions of the DSM, homosexuality was classed as a disorder but this has since been removed as it is no longer socially acceptable.   SOAP feel that, while mental disorders are frequently being changed by the professionals, patients are still forced to accept them.

A SOAP advocate says, “In the UK mental health system, if a patient rejects the psychiatric label, they are described as ‘lacking insight into their condition’ and the Mental Health Act is used to force them to take medication. How can a person be expected to agree to a label when they are changing every time the latest guide book comes out?”

The protest will give people the chance to voice their concerns about the DSM-5, and allow survivors of the psychiatric system to speak out about their experiences of labelling and forced treatment. SOAP will also be holding a memorial service for a former member who tragically took her own life following decades of forced medical treatment.

SOAP invites anybody who is concerned about the DSM-5, or other aspects of the mental health system, to come along on Tuesday 4th June – from 4.30pm till the early evening, at the Institute of Psychiatry, De Crespigny Park,London, SE5 8AF.

PDF press release available here: SOAP-DSM-5PressRelease

Maudsley Debates – Enabling or Labelling?

This House believes that psychiatric diagnosis has advanced the care of people with mental health problems.

Wednesday 5th June, 6pm (refreshments served from 5.30pm)

To coincide with the publication of the 5th edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), sometimes described as the “Bible” of American psychiatry, the Institute of Psychiatry is hosting a debate on the issue of psychiatric diagnosis.  Some argue that a rigorously  standardised system of classification of mental disorders forms an essential role in conceptualising a patient’s problem, in predicting what treatments are likely to be effective, and in conducting valid scientific research.  Others consider psychiatric diagnoses to be no more than labels, which lack scientific and predictive validity and serve only to stigmatise and objectify those who suffer from mental disorders.  These issues will be debated in the 48th Maudsley Debate on Wednesday 5 June at 6pm at the Wolfson Lecture Theatre, Institute of Psychiatry, Denmark Hill.  The motion is “This House believes that psychiatric diagnosis has advanced the care of people with mental health problems.”  

Speaking for the motion:

Prof Norman Sartorius, former president of the World Psychiatric Association

Prof Anthony David, Professor of Cognitive Neuropsychiatry, Institute of Psychiatry

Speaking against the motion:

Dr Felicity Callard, Senior Lecturer in Social Science for Medical Humanities, Durham University and Chair of the Board, Mental Disability Advocacy Center

Dr Pat Bracken, Clinical Director of Mental Health in West Cork and author of “Post- Psychiatry: Mental Health in a Post-Modern World”.  

Chair:  Sir Simon Wessely, Professor of Psychological Medicine and Vice Dean for Academic Psychiatry, Institute of Psychiatry

 Wolfson Lecture Theatre, Institute of Psychiatry Main Building, De Crespigny Park, London SE5 8AF

Contact: Hannah Baker

For further information please see: http://www.kcl.ac.uk/iop/news/debates/index.aspx 

Hearing Voices Network Launches Debate on DSM 5 and Psychiatric Diagnoses

 

IT’S THE BAD THINGS THAT HAPPEN TO YOU THAT CAN DRIVE YOU CRAZY!

The Hearing Voices Network in England has issued a position statement on DSM 5 and the wide issue of psychiatric diagnoses following last week’s debate on the need for a new paradigm in mental health services, reported largely as a ‘turf war’ between psychiatry and psychology. Concerned that this debate can all too easily sound ‘academic’ and miss the voices of the very people these systems impact upon – those diagnosed with mental health problems – HVN are taking the debate back to the people.

We believe that people with lived experience of diagnosis must be at the heart of any discussions about alternatives to the current system.

Jacqui Dillon, Hearing Voices Network, Chair.

In their statement, the Hearing Voices Network (HVN) state that psychiatric diagnoses are both scientifically unsound and can have damaging consequences. HVN suggest that asking ‘what’s happened to you?’ is more useful than ‘what’s wrong with you?’.

Concerned that essential funds are being wasted on expensive and futile genetic research, they call for the redirection of funds to address the societal problems known to lead to mental health problems and provide the holistic support necessary for recovery.

This is part of a growing, international movement by survivors of the psychiatric system who are questioning the adequacy of a biomedical model to make sense of and respond to madness and distress (see: http://www.intervoiceonline.org/ http://www.mindfreedom.org/ http://psychdiagnosis.weebly.com/ http://www.madinamerica.com/ http://www.occupypsychiatry.net/ http://www.youtube.com/openparadigmproject )

HVN invites people with lived experience of diagnosis and their supporters to engage in a discussion about the issues and help plan a way forwards.

People who use services are the true experts on how those services could be developed and delivered; they are the ones that know exactly what they need, what works well and what improvements need to be made. This is not just an academic or professional issue – it’s one that affects our lives.”

Jacqui Dillon, Hearing Voices Network, Chair

 ______________________________________________________________________________________________________________________________

Notes for the editor

 

  • The Hearing Voices Network (England) is a national, user-led charity that supports people who hear voices, see visions or have other unusual experiences. The Hearing Voices Network is part of the rapidly expanding global Hearing Voices Movement with 26 Hearing Voices Networks operating, across 5 continents. The Hearing Voices Network’s position statement can be read, and commented on, via their website http://www.hearing-voices.org/

 

 

Out Now: New Edition of Bestselling Book – Models of Madness

Models of Madness

Psychological, Social and Biological Approaches to Psychosis

Second Edition

Edited by John Read, University of Liverpool, UK

and Jacqui Dillon, National Chair, Hearing Voices Network, UK

 “Truly, a revolution is occuring in our understanding of severe mental illness…This volume will serve as an inspiration, not only to established clinicians and researchers, but to the young people who will develop better services for people with psychosis in the future.” 

– Prof Richard Bentall, From the Foreword.

 

The publication is very timely given the international debate about this month’s publication of DSM-5, the latest and most controversial version of psychiatry’s diagnostic ‘bible’. Our book documents all the evidence showing that these diagnoses are unscientific and a major cause of the stigma faced by people who receive these labels. It also presents the research demonstrating the urgent need for a fundamental paradigm shift towards evidence-based, effective and humane mental health services.”

– Prof John Read, Lead Editor

Are hallucinations and delusions really symptoms of an illness called ‘schizophrenia’? Are mental health problems really caused by chemical imbalances and genetic predispositions? Are psychiatric drugs as effective and safe as the drug companies claim? Is madness preventable?

This second edition of Models of Madness challenges the simplistic, pessimistic and often damaging theories and treatments of the ‘medical model’ of madness. Psychiatric diagnoses and medications are based on the false premise that human misery and distress are casued by chemical imbalances and genetic predispositions, and ignore the social causes of psychosis and what psychiatrists call ‘schizophrenia’. This edition updates the now extensive body of research showing that hallucinations and delusions etc. are best understood as reactions to adverse life events and that psychological and social approaches to helping are more effective and far safer than psychiatric drugs and electroshock treatment. A new final chapter discusses why such a damaging ideology has come to dominate mental health and, most importantly, how to change that.  

 Models of Madness is divided into three sections:

  1. Section One provides a history of madness, including examples of violence against the ‘mentally ill’, before critiquing the theories and treatments of contemporary biological psychiatry and documenting the corrupting influence of drug companies
  2. Section Two summarises the research showing that hallucinations, delusions etc. are primarily caused by adverse life events (eg. parental loss, bullying, abuse and neglect in childhood, poverty, etc.) and can be understood using psychological models ranging from cognitive to psychodynamic
  3. Section Three presents the evidence for a range of effective psychological and social approaches to treatment, from cognitive and family therapy to primary prevention.

This book brings together thirty-seven contributors from ten countries and a wide range of scientific disciplines. It provides an evidence-based, optimistic antidote to the pessimism of biological psychiatry.

Models of Madness will be essential reading for all involved in mental health, including service users, family members, service managers, policy makers, nurses, clinical psychologists, psychiatrists, psychotherapists, counsellors, psychoanalysts, social workers, occupational therapists, and art therapists.

Download flyer to receive 20% discount from Routledge!

Models of Madness Flyer

http://www.routledge.com/books/details/9780415579537/

 

 

Watch Keynote Presentation The Personal is Political Online

 
 
 
 
 
 

Here is a link to my recent presentation ‘The Personal is the Political’ which was filmed at the Critical Perspectives and Creative Responses to Experiences of Trauma and Distress Conference at University College Cork, Ireland:

http://panopto.ucc.ie/Panopto/Pages/Viewer/Default.aspx?id=45a4bb2c-6001-4a66-b5f1-bdec5e120f0e

This was a fantastic free event, attended by over 450 people over two days was organised by the School of Nursing & Midwifery & School of Applied Social Studies:

http://www.ucc.ie/en/nursingmidwifery/OurConferences/Title-175942-en.html 

and Critical Voices Network Ireland. See: http://www.criticalvoicesnetwork.com/ 

 

 

New Foreign Correspondent for Mad in America

I am thrilled to have been invited to become a foreign correspondent for the Mad in America web site – see: http://www.madinamerica.com/

I will be writing about the important and innovative work of the Hearing Voices Movement alongside many eminent colleagues, critical thinkers and activists working together to bring about an essential revolution in the world of mental health.

You can read my first post here: http://www.madinamerica.com/2013/01/the-hearing-voices-movement-beyond-critiquing-the-status-quo/

About Mad in America:

The site is designed to serve as a resource and a community for those interested in rethinking psychiatric care in the United States and abroad. We want to provide readers with news, stories of recovery, access to source documents, and the informed writings of bloggers that will further this enterprise.

The bloggers on this site include people with lived experience, peer specialists, psychiatrists, psychologists, social workers, program managers, social activists, attorneys, and journalists. While their opinions naturally vary, they share a belief that our current system of psychiatric care needs to be vastly improved, and, many would argue, transformed.

We also want to provide readers with the opportunity to add their voices to this discussion. We encourage readers to leave comments (see comment policy below), and to submit recovery stories and op-ed submissions. We encourage our readers to visit our forums to further this communal discussion.

Finally, we are commissioning original journalism, both in video and print, that explore on-going efforts to remake care in the U.S. and abroad, and also investigate the problems and deficiencies with the current drug-based paradigm of care.

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