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Voices in the dark: Mosaic Science Podcast

Taken from the Mosaic Science Podcast podcast site: https://mosaicscience.com/story/hearing-voices

This documentary is also available on the Mosaic podcast through iTunes, RSS, SoundCloud and wherever good podcasts are found.

We all have an inner voice. But for some, hearing voices can be much more distinct and unusual.

Adam has a voice with a unique name and identity. Jacqui hears hundreds of different voices. Dolly’s voices led her to believe she was Jesus. The voices John experienced drove him to the edge.

Voice hearing is often understood to be a symptom of mental illness, but many voice hearers refute this diagnosis, believing the voices they hear are based on significant events that have shaped their lives.

Through their stories we explore what it means to hear voices and discover how the phenomenon is being understood, from medieval tales of demonic visions to childhood language cognition, a Dutch psychiatrist helping voice hearers find meaning in their voices, and a pioneering ‘avatar’ therapy using computer technology.

Jacqui Dillon

Jacqui on BBC Horizon’s ‘Why Did I Go Mad?’

HorizonFor hundreds of years, psychiatry has treated voices and hallucinations as an enemy – regarding them as ‘insanity’ or ‘madness’ and seeing them as something to be quashed and even frightened of. But today, new scientific and psychological insights into how the brain works are leading to a radical rethink on what such experiences are – and how they should be treated.

Horizon follows three people living with voices, hallucinations and paranoia, to explore what causes this kind of phenomena. Providing a rare first-hand insight into these experiences, they reveal just what it is like to live with them day to day. They examine the impact of social, biological and environmental influences on conditions traditionally associated with insanity, such as schizophrenia and psychosis, and within the film they look at how new ways of understanding the brain are leading to a dramatic change in treatments and approaches, and examine whether targeting the root causes of psychosis can lead to recovery. Above all, they try to uncover why it happened to them – and whether it could happen to you.

Jacqui Dillon

See: http://www.bbc.co.uk/programmes/b006mgxf

Psychosis Journal Cover

Hearing Voices Peer Support Groups: A Powerful Alternative for People in Distress

Psychosis Journal CoverABSTRACT:

Hearing voices peer support groups offer a powerful alternative to mainstream psychiatric approaches for understanding and coping with states typically diagnosed as “hallucination”.  In this jointly authored first-person account, we distill what we have learned from 10 years of facilitating and training others to facilitate these groups and what enables them to work most effectively in the long term. Having witnessed the transformative power of these groups for people long considered unreachable as well as for those who receive some benefit from standard psychiatric treatment, we describe effects that cannot easily be quantified or studied within traditional research paradigms. We explain the structure and function of hearing voices peer support groups and the importance of training facilitators to acquire the skills necessary to ensure that groups operate safely, democratically, and in keeping with the theories and principles of the Hearing Voices Network.  The greater use of first-person experience as evidence in deciding what works or doesn’t work for people in extreme distress is advocated; randomized designs or statistically significant findings cannot constitute the only bases for clinical evaluations.

 

The Work of Experience Based Experts

Judi Chamberlin died in January, 2010 (Hevesi 2010). This chapter consists of a shortened version of Judi’s chapter in the first edition of Models of Madness, followed by a summary on the effectiveness of user led services and an account of the Hearing Voices Movement by Jacqui Dillon, Peter Bullimore and Debra Lampshire

Watch Keynote Presentation The Personal is Political Online

 
 
 
 
 
 

Here is a link to my recent presentation ‘The Personal is the Political’ which was filmed at the Critical Perspectives and Creative Responses to Experiences of Trauma and Distress Conference at University College Cork, Ireland:

http://panopto.ucc.ie/Panopto/Pages/Viewer/Default.aspx?id=45a4bb2c-6001-4a66-b5f1-bdec5e120f0e

This was a fantastic free event, attended by over 450 people over two days was organised by the School of Nursing & Midwifery & School of Applied Social Studies:

http://www.ucc.ie/en/nursingmidwifery/OurConferences/Title-175942-en.html 

and Critical Voices Network Ireland. See: http://www.criticalvoicesnetwork.com/ 

 

 

Mental Health Campaigners Welcome New Book About Schizophrenia

Published in The Guardian, 5th July 2011.

Mental health campaigners welcome book about schizophrenia.

The letters, journals and scribbled observations of David, diagnosed with schizophrenia, have been collated for a new book.

By Mary O’Hara

Schizophrenia is perhaps the most widely misunderstood and misrepresented of all serious mental illnesses in popular culture and media. So, when first-person accounts offering insights into the experience of someone who has lived with schizophrenia come along, they tend to be welcomed by mental health campaigners as an antidote to misinformation. Such has been the case with David’s Box, a new book documenting the journals and letters of a young man diagnosed with the illness in 1964 who took his own life seven years later.

Read more: http://www.guardian.co.uk/society/2011/jul/05/schizophrenia-journals-davids-box

Mental Health Campaigners Welcome New Book About Schizophrenia

The letters, journals and scribbled observations of David, diagnosed with schizophrenia, have been collated for a new book.

A positive piece published in the Guardian, 5th July 2011 by Mary O’Hara about this important new book – David’s Box: The journal and letters of a young man diagnosed as schizophrenic, 1960-1971, for which I have written a foreward.

http://www.guardian.co.uk/society/2011/jul/05/schizophrenia-journals-davids-box

Recovery, Discovery and Revolution: The Work of Intervoice and the Hearing Voices Movement

 

Contributors include Peter Beresford, Mary Boyle, John Cromby, Jacqui Dillon, Dave Harper, Eleanor Longden, Midlands Psychology group, Joanna Moncrieff, David Pilgrim, Phil Thomas and Jan Wallcraft.

 

This book contests how both society and Mental Health Services conceptualise and respond to madness. Despite sustained criticisms from academia, survivor groups and practitioners, the bio-genetic model of madness prevails and therefore shapes our very notions of what madness is, who the mad are and how to respond. This dominant yet narrow view, at the heart of the psychiatric system, is misinformed and misleading as well as fraught with tensions between the provision of care and the function of social control. How and why does this system continue? What can be done to change it?
 
Encompassing both academic analysis and practical application, Madness Contested brings together nurses, service-users, psychiatrists, psychologists, practitioners, and academics who promote alternative ways to understand and approach madness. Their contributions debate questions such as: What are the processes and forms of power involved in the current system? What interests are at play in maintaining dominant theories and practices? What are the alternative conceptualizations of madness? Can practice incorporate openness, modesty and a desire for equality? The perspectives are broad yet complimentary.
 
Of interest to all those interested in critical debates and alternative models of madness and mental health care, including: academics, practitioners, service users, survivors, carers, students.
For further information please see this link: http://www.pccs-books.co.uk/products/madness-contested-1/#

Or downlead the flyer: MadnessContestedEdsColesKeenanandDiamond