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Background

The Tale of an Ordinary Little Girl

Jacqui Dillon aged fiveOnce upon a time there was a little girl, just an ordinary little girl, who like all children is born with basic human needs – the need to be fed and to be kept warm and safe. Like all children, she needs love and empathy to thrive and to grow and to fulfill her potential, like all children deserve to.

But like each and every one of us born into this magnificent and mysterious universe, the arbitrary nature of who we are born to is a random act and like many children, far too many children in this world, she has the misfortune to be born to parents who are simply unable to provide the most basic necessities. For her parents are themselves hurt and broken children, thwarted and twisted, encased in all powerful adult bodies, masquerading as a mother and a father.

When the little girl first looks up into her mother’s eyes for a reflection of herself, to know that she is real and that she exists and that she is safe in this big, scary, world, she is met with a cold, hostile stare. For when mother looks down at this scrap of humanity, her baby girl, she does not see her beauty or her innocence but only her own helplessness, her own vulnerability, her own unmet needs and all of these things she despises and wants to smash, stamp out, annihilate. The baby wails in terror and reaches out her small hand to this woman, her mother, and the woman laughs and bites the baby’s hand, just as her own mother had done to her.

The mother throws the child across her shoulder and together they descend, deep into the underworld, to a place where unspeakable acts of horror will be committed. The underworld is inhabited with many demons, monsters and witches of the worst kind. The woman presents her possession, the child, to a man who can only be the devil. Together they laugh and they defile the child and rob her of her innocence.

The pain and the shock and the terror are too much for the child to bear for she is being betrayed and exploited by those who are meant to protect her and there is no escape, there is no saviour, there is no light at the end of the tunnel. All the while, the child repeats over and over to herself – I am not here; this is not happening to me; I am not in this body. When all at once the child experiences a tremendous pressure building inside her head as the urgent need to flee collides with the awful realisation of her own helplessness and then BANG! there is a huge explosion as her tiny mind shatters into a thousand, little pieces. She serenely floats off into the ether and calmly looks down from a great height at the stupid girl who is left screaming in the underworld. She pities the pathetic creature but she simply cannot be held responsible for those who refuse to help themselves.

The girl inhabits a dual world. In one, she is a normal child with normal parents, a gifted child who goes to school, plays with her friends, and likes wearing ribbons in her hair. In the other world, she is a dirty little bitch, evil and unlovable, treated with cruelty and contempt by anyone who can get their filthy hands on her.

Everything she gets she deserves. She is repeatedly threatened that if she ever tells anyone about what happens in the underworld, she will be put into prison because she has committed terrible crimes, or everyone will think she is mad and they will lock her in an asylum forever and throw away the key; no one will ever believe her. Or the devil, demons and witches will find her, they will always find her, they will hunt her down and they will kill her, her children, anyone or anything that she ever loves. However much she yearns for it, she has no place of safety, no saviour to rescue her, so she does what many children have to do. She survives the best way she can.

The survival strategies that she unconsciously develops as a child create an illusion of control, an illusion that she has some agency over what happens to her. Despite her abject helplessness, she utilises all the resources available to her at the time – her mind, her body, her spirit – and she fights for her life.

She begins to hear voices; voices that talk to her, talk about her, who comfort her, protect her and make her feel less alone. In time, they control and terrorise her but help her to stay alive. One of the first voices that she hears is that of ‘the great mother’. She is a very powerful maternal figure, who is beautiful and kind, a beneficent figure who is always there comforting and soothing her. The great mother is one of the girl’s greatest inventions for she is a clever little girl, yet she keeps this illusion secret from herself for the longest time. The great mother is central in supporting the girl to survive with her humanity intact and she also enables the girl to become a loving and compassionate mother to her own daughters, when the time comes.

Her body becomes the locus of her horror and her need for there is no other place to express it, there is no-one to tell. She begins cutting herself, banging her head against the wall, tearing at herself, all ways she discovers, of safely releasing her anguish. She draws no attention to herself. She hurts no one else. No one can touch her. Her relationship with food becomes a mysterious journey of adventure on which she discovers many special powers. By controlling what she eats, overeating, forcing herself to vomit and starving herself she is the creator of many marvellous tricks, sleights of hand that make her feel more in control in a world that is filled with terrible, inescapable, arbitrary cruelty. For once, she has control of her body. She can do what she likes to it. She is mistress of her own universe.

Her creativity extends beyond her body into the world. She loves writing stories and poems, drawing and painting, reading as many books as she can get her little hands on. Books allow her access into other worlds, worlds where there are endless possibilities. In the realms of her imagination the characters and stories in books captivate and entrance her, become meaningful to her to the extent that she internalises them inside of her so that she feels less alone and the world still holds some magic and wonder for her. Her sense of justice is always there burning brightly inside of her, the whole time. She dreams of a world where one day she will be safe and free and loved.

She finally escapes the underworld after many torturous years when she reaches womanhood. They may have broken her mind and her body but thankfully, her spirit is still intact. She is inhabited by a multitude of characters each who have their part to play in helping her to survive. She does not realise this yet. For now, she hears their voices and sometimes catches a glimpse of them in the mirror, but she does her best to conceal their existence to herself and everyone else. She is adept at inhabiting different worlds and used to keeping secrets locked inside of her. The voices of the devils, witches and demons along with those of the children still trapped in the underworld, echo in her mind long after the worst has already happened, reminding her of what they will do if she ever speaks about what has happened, so she remains silent.

One day, years later a miracle occurs and it is now the girl who sits and looks down into the eyes of her own, baby daughter. This child has been much longed for and is much wanted and she is awestruck by the beauty and perfection of this tiny being. For the first time in her life, the girl’s body has done something that she can feel proud of. She smiles at the baby and beams love into her eyes and the child knows that she is real and that she is loved and that she is safe in this big, scary world.

Without warning, this idyllic scene is invaded by demons from the past. The girl’s voices multiply and intensify saying things that disturb and frighten her. She begins seeing horrifying images of abuse, torture and death. She can feel it in her body. Marks and bruises appear on her skin like stigmata. She begins to cut herself frequently in an attempt to appease the devil but to no effect. He is never satisfied. She becomes convinced that someone will try and hurt her and her baby because she knows how dangerous the world can be for little children. She becomes intensely fearful; terrified to leave the house in case someone tries to abduct them and take them to the underworld to kill them. She fears that she is going mad like she always knew she would, like they always said she would. She inhabits a dual world. She is a devoted mother, with a close and intimate bond with her baby, breastfeeding her on demand, yet she knows she is contaminating her with all of the poison that swirls around inside of her. She feels deeply ashamed of herself for being such a freak of nature and starts to feel as if there is no escape from the horrors of the past. She sees no way out but to end her life but she cannot bear the thought of leaving behind a motherless child.

In desperation, she seeks asylum in a place that is meant to provide sanctuary for her. She hopes to find safety and support for her and her precious child and believes that asking for help is a responsible and wise act. Perhaps when she tells them about what happened to her in the underworld they might even congratulate her on her efforts thus far. Surely they will see what a tremendous achievement it has been to get this far on her own.

The witches, devils and demons try to silence her with their vicious threats yet she begins to tell the gatekeepers at the asylum, who assure her that they are learned men, healers in fact, about the children who have suffered in the underworld. To her astonishment, they reiterate the words of the devil. There is no underworld. She is crazy. She is ill. She was born with something wrong with her. She feels as if she has been slapped in the face, kicked while she is down, re-abused. This is insult to injury. She is wild with outrage and has to restrain herself so as not to rip them all to shreds. This reality is enough to drive anyone crazy. The place that is meant to provide her with sanctuary is the place that nearly drives her over the edge once and for all.

She has escaped hell once already – she is a warrior after all – and uses whatever means necessary to deceive and trick her way past the gatekeepers. Once she is liberated, she runs as fast as she can and finds her way back to her child. She clutches her baby to her chest and gasps for breath. There is no sanctuary yet she cannot give up hope. She has come this far. She is a woman on a mission. One day, she will show them all.

After much searching, she finally encounters truly wise people, brave souls who have the courage and integrity to witness her truth. As much as it pains them, they listen to her stories from the underworld, and hear of the terrible suffering that many children have endured. Together they walk down a long winding, road, back to the underworld, where a process of truth and reconciliation, of listening, bearing witness and of facing the horrors of the past can take place. The world will never look the same again to them for they have seen the underworld. And even though she is a freak of nature they love her and they hold her and they soothe her and gradually she begins to feel human. She begins to feel real.

She discovers that she isn’t alone in quite the same way that she always had been. She begins to accept support as an act of courage and commitment to life and the future. Only then can she begin to truly mourn for all she has lost. She did not know it was possible to cry so many tears. They continue to hold her.

The most profound realisation dawns on her gradually, becoming apparent incrementally over time and then one day she suddenly knows what she has always known. Her voices are more than just voices. They are many different selves, with different names, ages, experiences, feelings, identities; dissociated selves that became internal representations of her external world. Rather than trying to eradicate these different parts of her even though they sometimes frighten her, she begins to embrace them. Each is part of the whole of her. She begins to listen to them and understand them and to greet them with compassion and understanding. To her delight, they begin to teach her the mysteries of healing, alchemy and magic. Gradually she feels less ashamed of who she is and begins to marvel at how creative she has been in surviving the horrors of the underworld. At times it feels as if she has created a work of art.

On the other hand, she finds it hard to comprehend a world that often makes no sense to her, a corrupt and crazy world which frequently exploits the vulnerable and protects the powerful. With all that she knows and all that she has seen and all that she has learnt, she cannot just standby and let that happen. If she is to be a part of the world then she must do what she can to make it a place she can actually inhabit and remain sane.

She begins to meet with others, warrior children, maddened men and women, fellow travellers who have escaped the underworld or some other kind of hell, as well as rebels and renegades, truth-tellers, pioneers and freedom fighters, all walking along the same path as her, seeking the same kind of justice. They too feel a collective responsibility to expose the truth and not allow further injustices to be perpetrated. They understand that being a bystander and remaining silent is the same as being complicit. They know that freedom is never given freely by those who have power; it has to be fought for. They understand that only the truth will set us free.

After a long, arduous journey that has taken her many, many years to accomplish, the girl finally feels as if she has come home. She is safe now, she is free, she is loved. She wears her battle scars with pride. She may still hear the echoes from the past but she considers herself one of the lucky ones. In many ways she is blessed. Her life and all that she did to get here, is a triumph.

This paper is based on presentations at numerous international conferences/seminars, including Royal College of Psychiatrists (UK) Training Day on Trauma and Violence, London UK, November 2008; Recovery Conference, Aarhus, Denmark, May 2009; World Hearing Voices Congress, Maastricht, Netherlands, September 2009.

The Personal is Political

Telling Stories Book CoverTelling Stories? explores the contemporary state of affairs in the understanding and treatment of psychosis. An inclusive approach to mental distress requires that in order to truly understand psychosis we must begin by listening to those who know this from the inside out; the voices and narrative of those who have been condemned as “unanalysable” and mad.

Far from being fantastical, the complex stories that are being articulated communicate painful truths and the myriad ways in which the human psyche survives overwhelming trauma. This book is the culmination of an integrated and creative alliance between those on the cutting edge, experientially, in research, diagnosis, and treatment; this multidisciplinary dialogue proposes a new relational and attachment orientated paradigm for the 21st century. In contrast to the containment model that is currently favoured, this advocates listening and talking therapies, and the healing power of a loving relationship, offering those with psychosis the possibility of more nourishing engagement with the world.

Recovery From ‘Psychosis’

In making sense of what has been deemed as ‘psychosis’ it is essential that we see so called symptoms as profoundly meaningful attempts to survive overwhelming and distressing life experiences.  There is inherent meaning in madness which is inextricably bound up in unresolved, traumatic experiences. These meanings may be communicated in a number of highly symbolic, metaphorical and literal ways and need to be untangled, teased out and examined within the context of the person’s life history. Each voice is an echo of the person’s experience so an attitude of curiosity, understanding and compassion towards all voices is the best stance as it will encourage and support internal communication and ultimately, self acceptance.

This work demands seeing the world and human experience in new ways including an understanding that reality is shaped by experience. This, combined with a willingness to view life through the lens of the person’s subjective experience enables the co-creation of a shared meaning to emerge, deepening mutual understanding and leading to increasing acceptance of self and other.  To support and nurture healing from ‘psychosis’, faith in the possibility of recovery is vital.

The Tale of An Ordinary Little Girl

Psychosis Journal CoverThe Tale of an Ordinary Little Girl won the 2010 Award for Best Paper in the Second Volume of Psychosis (Category B: Experienced-based articles).

Hearing voices, self-harm, eating “disorders” and dissociation, when viewed objectively, are frequently classified as symptoms of serious mental illnesses and disordered personalities that require treatment, eradication and cure.

This convenient societal solution to the complex problem of endemic childhood abuse requires that victims of abuse endure further insult to injury and become the problem to be dealt with.

By tracing the roots of so-called “symptoms” back to their origins in traumatic childhood events and having the courage to bear witness to painful truths, a more accurate, humane and respectful picture emerges which reframes “symptoms” as essential survival techniques.

The mark of a responsible society and responsive services is the willingness to share collective responsibility for these experiences, to honour them, support them and learn from them at all levels.

Living With Voices: An Anthology of 50 Voice Hearers Stories of Recovery

Living With Voices Book CoverA new analysis of the hearing voices experience outside the illness model resulted in accepting and making sense of voices. This study of 50 stories forms the evidence for this successful new approach to working with voice hearers.

At the heart of this book are the stories of fifty people who have recovered from the distress of hearing voices. They have overcome the disabling social and psychiatric attitudes towards voice hearing and have also fought with themselves to accept and make sense of the voices. They have changed their relationship with their voices in order to reclaim their lives.

All the people in this book describe their recovery; how they now accept their voices as personal, and how they have learnt to cope with them and have changed their relationship with them. They have discovered that their voices are not a sign of madness but a reaction to problems in their lives that they couldn’t cope with, and they have found that there is a relationship between the voices and their life history, that the voices talk about problems that they haven’t dealt with – and that they therefore make sense.

Bad Science

The CASL campaign is driven by two central factors:

  • The concept of schizophrenia is unscientific and has outlived any usefulness it may once have claimed.
  • The label schizophrenia is extremely damaging to those to whom it is applied.

 The idea that schizophrenia can be viewed as a specific, genetically determined, biologically driven brain disease has been based on bad science and social control since its inception. English scientists have proven that the concept of schizophrenia is invalid. Indeed, few scientists represent themselves as happy with the illness model, and increasingly it is only seen to serve the interests of the pharmaceutical industry’s voracious appetite for control of human experience. It is also harmful because the diagnostic process makes it impossible to make sense of the problems that lie at the root of people’s distress. The scandal is that in the 21st century intelligent human beings are deemed to be ‘lacking insight’ for questioning a label proven to lack scientific validity.

Survival Techniques

Being proud of my experiences and being able to share them with others, challenges the stigma of having what are considered to be mental health problems, and means becoming a part of a collective voice to improve mental health services for all. This is both empowering and liberating, in itself.

Collective Voices

The Hearing Voices Movement was founded more than 20 years ago, following the ground-breaking research of Professor Marius Romme and Dr Sandra Escher who have advocated for a radical shift in the way we understand the phenomenon of Hearing Voices.  Rather than taking the traditional approach favored by biological psychiatry, which views voices as a product of brain and cognitive faults, their research has firmly established that voices make sense when looking at the traumatic circumstances in life that provoked them. As the improvement in people who are encouraged to talk about their voices becomes apparent, an increasing number of voice hearers and mental health professionals are beginning to see that the key to making sense of these experiences lies in understanding the content of voices. Voices are meaningful and for some, an experience to be celebrated.

Pages

Background

The Tale of an Ordinary Little Girl

Jacqui Dillon aged fiveOnce upon a time there was a little girl, just an ordinary little girl, who like all children is born with basic human needs – the need to be fed and to be kept warm and safe. Like all children, she needs love and empathy to thrive and to grow and to fulfill her potential, like all children deserve to.

But like each and every one of us born into this magnificent and mysterious universe, the arbitrary nature of who we are born to is a random act and like many children, far too many children in this world, she has the misfortune to be born to parents who are simply unable to provide the most basic necessities. For her parents are themselves hurt and broken children, thwarted and twisted, encased in all powerful adult bodies, masquerading as a mother and a father.

When the little girl first looks up into her mother’s eyes for a reflection of herself, to know that she is real and that she exists and that she is safe in this big, scary, world, she is met with a cold, hostile stare. For when mother looks down at this scrap of humanity, her baby girl, she does not see her beauty or her innocence but only her own helplessness, her own vulnerability, her own unmet needs and all of these things she despises and wants to smash, stamp out, annihilate. The baby wails in terror and reaches out her small hand to this woman, her mother, and the woman laughs and bites the baby’s hand, just as her own mother had done to her.

The mother throws the child across her shoulder and together they descend, deep into the underworld, to a place where unspeakable acts of horror will be committed. The underworld is inhabited with many demons, monsters and witches of the worst kind. The woman presents her possession, the child, to a man who can only be the devil. Together they laugh and they defile the child and rob her of her innocence.

The pain and the shock and the terror are too much for the child to bear for she is being betrayed and exploited by those who are meant to protect her and there is no escape, there is no saviour, there is no light at the end of the tunnel. All the while, the child repeats over and over to herself – I am not here; this is not happening to me; I am not in this body. When all at once the child experiences a tremendous pressure building inside her head as the urgent need to flee collides with the awful realisation of her own helplessness and then BANG! there is a huge explosion as her tiny mind shatters into a thousand, little pieces. She serenely floats off into the ether and calmly looks down from a great height at the stupid girl who is left screaming in the underworld. She pities the pathetic creature but she simply cannot be held responsible for those who refuse to help themselves.

The girl inhabits a dual world. In one, she is a normal child with normal parents, a gifted child who goes to school, plays with her friends, and likes wearing ribbons in her hair. In the other world, she is a dirty little bitch, evil and unlovable, treated with cruelty and contempt by anyone who can get their filthy hands on her.

Everything she gets she deserves. She is repeatedly threatened that if she ever tells anyone about what happens in the underworld, she will be put into prison because she has committed terrible crimes, or everyone will think she is mad and they will lock her in an asylum forever and throw away the key; no one will ever believe her. Or the devil, demons and witches will find her, they will always find her, they will hunt her down and they will kill her, her children, anyone or anything that she ever loves. However much she yearns for it, she has no place of safety, no saviour to rescue her, so she does what many children have to do. She survives the best way she can.

The survival strategies that she unconsciously develops as a child create an illusion of control, an illusion that she has some agency over what happens to her. Despite her abject helplessness, she utilises all the resources available to her at the time – her mind, her body, her spirit – and she fights for her life.

She begins to hear voices; voices that talk to her, talk about her, who comfort her, protect her and make her feel less alone. In time, they control and terrorise her but help her to stay alive. One of the first voices that she hears is that of ‘the great mother’. She is a very powerful maternal figure, who is beautiful and kind, a beneficent figure who is always there comforting and soothing her. The great mother is one of the girl’s greatest inventions for she is a clever little girl, yet she keeps this illusion secret from herself for the longest time. The great mother is central in supporting the girl to survive with her humanity intact and she also enables the girl to become a loving and compassionate mother to her own daughters, when the time comes.

Her body becomes the locus of her horror and her need for there is no other place to express it, there is no-one to tell. She begins cutting herself, banging her head against the wall, tearing at herself, all ways she discovers, of safely releasing her anguish. She draws no attention to herself. She hurts no one else. No one can touch her. Her relationship with food becomes a mysterious journey of adventure on which she discovers many special powers. By controlling what she eats, overeating, forcing herself to vomit and starving herself she is the creator of many marvellous tricks, sleights of hand that make her feel more in control in a world that is filled with terrible, inescapable, arbitrary cruelty. For once, she has control of her body. She can do what she likes to it. She is mistress of her own universe.

Her creativity extends beyond her body into the world. She loves writing stories and poems, drawing and painting, reading as many books as she can get her little hands on. Books allow her access into other worlds, worlds where there are endless possibilities. In the realms of her imagination the characters and stories in books captivate and entrance her, become meaningful to her to the extent that she internalises them inside of her so that she feels less alone and the world still holds some magic and wonder for her. Her sense of justice is always there burning brightly inside of her, the whole time. She dreams of a world where one day she will be safe and free and loved.

She finally escapes the underworld after many torturous years when she reaches womanhood. They may have broken her mind and her body but thankfully, her spirit is still intact. She is inhabited by a multitude of characters each who have their part to play in helping her to survive. She does not realise this yet. For now, she hears their voices and sometimes catches a glimpse of them in the mirror, but she does her best to conceal their existence to herself and everyone else. She is adept at inhabiting different worlds and used to keeping secrets locked inside of her. The voices of the devils, witches and demons along with those of the children still trapped in the underworld, echo in her mind long after the worst has already happened, reminding her of what they will do if she ever speaks about what has happened, so she remains silent.

One day, years later a miracle occurs and it is now the girl who sits and looks down into the eyes of her own, baby daughter. This child has been much longed for and is much wanted and she is awestruck by the beauty and perfection of this tiny being. For the first time in her life, the girl’s body has done something that she can feel proud of. She smiles at the baby and beams love into her eyes and the child knows that she is real and that she is loved and that she is safe in this big, scary world.

Without warning, this idyllic scene is invaded by demons from the past. The girl’s voices multiply and intensify saying things that disturb and frighten her. She begins seeing horrifying images of abuse, torture and death. She can feel it in her body. Marks and bruises appear on her skin like stigmata. She begins to cut herself frequently in an attempt to appease the devil but to no effect. He is never satisfied. She becomes convinced that someone will try and hurt her and her baby because she knows how dangerous the world can be for little children. She becomes intensely fearful; terrified to leave the house in case someone tries to abduct them and take them to the underworld to kill them. She fears that she is going mad like she always knew she would, like they always said she would. She inhabits a dual world. She is a devoted mother, with a close and intimate bond with her baby, breastfeeding her on demand, yet she knows she is contaminating her with all of the poison that swirls around inside of her. She feels deeply ashamed of herself for being such a freak of nature and starts to feel as if there is no escape from the horrors of the past. She sees no way out but to end her life but she cannot bear the thought of leaving behind a motherless child.

In desperation, she seeks asylum in a place that is meant to provide sanctuary for her. She hopes to find safety and support for her and her precious child and believes that asking for help is a responsible and wise act. Perhaps when she tells them about what happened to her in the underworld they might even congratulate her on her efforts thus far. Surely they will see what a tremendous achievement it has been to get this far on her own.

The witches, devils and demons try to silence her with their vicious threats yet she begins to tell the gatekeepers at the asylum, who assure her that they are learned men, healers in fact, about the children who have suffered in the underworld. To her astonishment, they reiterate the words of the devil. There is no underworld. She is crazy. She is ill. She was born with something wrong with her. She feels as if she has been slapped in the face, kicked while she is down, re-abused. This is insult to injury. She is wild with outrage and has to restrain herself so as not to rip them all to shreds. This reality is enough to drive anyone crazy. The place that is meant to provide her with sanctuary is the place that nearly drives her over the edge once and for all.

She has escaped hell once already – she is a warrior after all – and uses whatever means necessary to deceive and trick her way past the gatekeepers. Once she is liberated, she runs as fast as she can and finds her way back to her child. She clutches her baby to her chest and gasps for breath. There is no sanctuary yet she cannot give up hope. She has come this far. She is a woman on a mission. One day, she will show them all.

After much searching, she finally encounters truly wise people, brave souls who have the courage and integrity to witness her truth. As much as it pains them, they listen to her stories from the underworld, and hear of the terrible suffering that many children have endured. Together they walk down a long winding, road, back to the underworld, where a process of truth and reconciliation, of listening, bearing witness and of facing the horrors of the past can take place. The world will never look the same again to them for they have seen the underworld. And even though she is a freak of nature they love her and they hold her and they soothe her and gradually she begins to feel human. She begins to feel real.

She discovers that she isn’t alone in quite the same way that she always had been. She begins to accept support as an act of courage and commitment to life and the future. Only then can she begin to truly mourn for all she has lost. She did not know it was possible to cry so many tears. They continue to hold her.

The most profound realisation dawns on her gradually, becoming apparent incrementally over time and then one day she suddenly knows what she has always known. Her voices are more than just voices. They are many different selves, with different names, ages, experiences, feelings, identities; dissociated selves that became internal representations of her external world. Rather than trying to eradicate these different parts of her even though they sometimes frighten her, she begins to embrace them. Each is part of the whole of her. She begins to listen to them and understand them and to greet them with compassion and understanding. To her delight, they begin to teach her the mysteries of healing, alchemy and magic. Gradually she feels less ashamed of who she is and begins to marvel at how creative she has been in surviving the horrors of the underworld. At times it feels as if she has created a work of art.

On the other hand, she finds it hard to comprehend a world that often makes no sense to her, a corrupt and crazy world which frequently exploits the vulnerable and protects the powerful. With all that she knows and all that she has seen and all that she has learnt, she cannot just standby and let that happen. If she is to be a part of the world then she must do what she can to make it a place she can actually inhabit and remain sane.

She begins to meet with others, warrior children, maddened men and women, fellow travellers who have escaped the underworld or some other kind of hell, as well as rebels and renegades, truth-tellers, pioneers and freedom fighters, all walking along the same path as her, seeking the same kind of justice. They too feel a collective responsibility to expose the truth and not allow further injustices to be perpetrated. They understand that being a bystander and remaining silent is the same as being complicit. They know that freedom is never given freely by those who have power; it has to be fought for. They understand that only the truth will set us free.

After a long, arduous journey that has taken her many, many years to accomplish, the girl finally feels as if she has come home. She is safe now, she is free, she is loved. She wears her battle scars with pride. She may still hear the echoes from the past but she considers herself one of the lucky ones. In many ways she is blessed. Her life and all that she did to get here, is a triumph.

This paper is based on presentations at numerous international conferences/seminars, including Royal College of Psychiatrists (UK) Training Day on Trauma and Violence, London UK, November 2008; Recovery Conference, Aarhus, Denmark, May 2009; World Hearing Voices Congress, Maastricht, Netherlands, September 2009.

The Personal is Political

Telling Stories Book CoverTelling Stories? explores the contemporary state of affairs in the understanding and treatment of psychosis. An inclusive approach to mental distress requires that in order to truly understand psychosis we must begin by listening to those who know this from the inside out; the voices and narrative of those who have been condemned as “unanalysable” and mad.

Far from being fantastical, the complex stories that are being articulated communicate painful truths and the myriad ways in which the human psyche survives overwhelming trauma. This book is the culmination of an integrated and creative alliance between those on the cutting edge, experientially, in research, diagnosis, and treatment; this multidisciplinary dialogue proposes a new relational and attachment orientated paradigm for the 21st century. In contrast to the containment model that is currently favoured, this advocates listening and talking therapies, and the healing power of a loving relationship, offering those with psychosis the possibility of more nourishing engagement with the world.

Recovery From ‘Psychosis’

In making sense of what has been deemed as ‘psychosis’ it is essential that we see so called symptoms as profoundly meaningful attempts to survive overwhelming and distressing life experiences.  There is inherent meaning in madness which is inextricably bound up in unresolved, traumatic experiences. These meanings may be communicated in a number of highly symbolic, metaphorical and literal ways and need to be untangled, teased out and examined within the context of the person’s life history. Each voice is an echo of the person’s experience so an attitude of curiosity, understanding and compassion towards all voices is the best stance as it will encourage and support internal communication and ultimately, self acceptance.

This work demands seeing the world and human experience in new ways including an understanding that reality is shaped by experience. This, combined with a willingness to view life through the lens of the person’s subjective experience enables the co-creation of a shared meaning to emerge, deepening mutual understanding and leading to increasing acceptance of self and other.  To support and nurture healing from ‘psychosis’, faith in the possibility of recovery is vital.

The Tale of An Ordinary Little Girl

Psychosis Journal CoverThe Tale of an Ordinary Little Girl won the 2010 Award for Best Paper in the Second Volume of Psychosis (Category B: Experienced-based articles).

Hearing voices, self-harm, eating “disorders” and dissociation, when viewed objectively, are frequently classified as symptoms of serious mental illnesses and disordered personalities that require treatment, eradication and cure.

This convenient societal solution to the complex problem of endemic childhood abuse requires that victims of abuse endure further insult to injury and become the problem to be dealt with.

By tracing the roots of so-called “symptoms” back to their origins in traumatic childhood events and having the courage to bear witness to painful truths, a more accurate, humane and respectful picture emerges which reframes “symptoms” as essential survival techniques.

The mark of a responsible society and responsive services is the willingness to share collective responsibility for these experiences, to honour them, support them and learn from them at all levels.

Living With Voices: An Anthology of 50 Voice Hearers Stories of Recovery

Living With Voices Book CoverA new analysis of the hearing voices experience outside the illness model resulted in accepting and making sense of voices. This study of 50 stories forms the evidence for this successful new approach to working with voice hearers.

At the heart of this book are the stories of fifty people who have recovered from the distress of hearing voices. They have overcome the disabling social and psychiatric attitudes towards voice hearing and have also fought with themselves to accept and make sense of the voices. They have changed their relationship with their voices in order to reclaim their lives.

All the people in this book describe their recovery; how they now accept their voices as personal, and how they have learnt to cope with them and have changed their relationship with them. They have discovered that their voices are not a sign of madness but a reaction to problems in their lives that they couldn’t cope with, and they have found that there is a relationship between the voices and their life history, that the voices talk about problems that they haven’t dealt with – and that they therefore make sense.

Bad Science

The CASL campaign is driven by two central factors:

  • The concept of schizophrenia is unscientific and has outlived any usefulness it may once have claimed.
  • The label schizophrenia is extremely damaging to those to whom it is applied.

 The idea that schizophrenia can be viewed as a specific, genetically determined, biologically driven brain disease has been based on bad science and social control since its inception. English scientists have proven that the concept of schizophrenia is invalid. Indeed, few scientists represent themselves as happy with the illness model, and increasingly it is only seen to serve the interests of the pharmaceutical industry’s voracious appetite for control of human experience. It is also harmful because the diagnostic process makes it impossible to make sense of the problems that lie at the root of people’s distress. The scandal is that in the 21st century intelligent human beings are deemed to be ‘lacking insight’ for questioning a label proven to lack scientific validity.

Survival Techniques

Being proud of my experiences and being able to share them with others, challenges the stigma of having what are considered to be mental health problems, and means becoming a part of a collective voice to improve mental health services for all. This is both empowering and liberating, in itself.

Collective Voices

The Hearing Voices Movement was founded more than 20 years ago, following the ground-breaking research of Professor Marius Romme and Dr Sandra Escher who have advocated for a radical shift in the way we understand the phenomenon of Hearing Voices.  Rather than taking the traditional approach favored by biological psychiatry, which views voices as a product of brain and cognitive faults, their research has firmly established that voices make sense when looking at the traumatic circumstances in life that provoked them. As the improvement in people who are encouraged to talk about their voices becomes apparent, an increasing number of voice hearers and mental health professionals are beginning to see that the key to making sense of these experiences lies in understanding the content of voices. Voices are meaningful and for some, an experience to be celebrated.